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because KNOWLEDGE IS POWER
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Post Polio Information & More
Lincolnshire Post-Polio Network - Main Gate
Polio Experience Network of Spokane. WA
The physiologic mechanisms that have been proposed to explain the emergence of PPS in Polio survivors; how PPS can be distinguished
from other diseases; and how it is currently treated.
NOTE: Many PPSer's find themselves dealing with sudden swallowing
and digestive problems in a much more disproportionate number
of the "normal" population, such as hiatal hernia, sudden choking
and swallowing problems, Irritated Bowel Syndrome,
Gastroesophageal Reflux Disease etc. Patients and Doctors
need to keep in mind that the stomach is a complex
combination of muslces.......all the muscles and nerves in a Polio
survivor's body, INCLUDING the eyes, may show losses due to the
PPS.
Before the system tramples you, when you are considering applying for Disability income, go this site and gather the information available. Share the information with your doctor, family and friends. Follow the protecol and learn to use the vocabilary that the workers evaluating your case are accustomed to.
Gastroesophageal Reflux DiseaseJohn Robert Claussen, PA-C, MPAS
[Clinician Reviews 9(6):69-72, 75-77, 80-82, 85, 1999. © 1999 Clinicians Publishing Group and Williams & Wilkins.]
Good resource sites if your looking for information about equipment:
UPDATED LINKS
Some GREAT ideas and a worthwhile site to look at
As I come across products that I think are good quality made by reliable manufacturer's, I will provide you with the information. The ones below came to my attenion via a mailing. I am providing them as informational only. I suggest that you look into the ones you think you need and compare what they offer to others like them you may find. Remember to compare price and all options available on any product.
Ways to freedom:
To contact them call 800-795-6227 for more information or
write to them at 2715 Seaboard lane, Long Beach, CA 90805
Understand that certain items, i.e. wheelchairs, scooters, breathing equipment, adjustable beds, some bathing equipment, and more are covered by your insurance or Medicare, provided your doctor writes an order for the piece of equipment. Not all wheelchairs or scooters are alike. They come in various sizes, with different options. Your needs should and must be addressed before aquiring an expensive piece of equipment like this, because your insurance coverage will only provide you with a like piece of equipment once every 5 years.
Anyone supplying you with a piece of equipment should provide a service for a trained personnel to measure you, make recommedations to you, and give you an opportunity to try the equipment prior to purchase. If they have any questions or suggestions I would expect and insist that they contact your doctor to discuss the information so that you are provided with the equipment that will provide you with the best possible scenerio. REMEMBER: There is no such thing as a stupid question! Do NOT let yourself be intiminated or feel pressured to accept a piece of equipment that will not fit your lifestyle.
The ideal situation would be for your doctor to refer you to an Occupational Therapist and a Physical Therapist. The doctors in most cases, are not familiar with all the equipment that might help you stay as independent as possible for as long as possible. On the other hand, that is exactly what a good Occupational Therapist and/or Physical therapist can and should do for you. They are kept appraised of the latest utensils for enabling you to take care of all, or most of your personal needs as well as the larger items and the available options of lifts, manual and motorized chairs, scooters, beds etc. Some are very creative and can combine or make modifications to some equipment that will make it much easier for you to function.
Polio Above The Neck
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